Experiences of the transition to adult services, for young people with Type 1 Diabetes
Healthwatch Lancashire and Healthwatch Blackburn with Darwen were asked by the East Lancashire Hospital Trust (ELHT) to conduct a survey focusing on the experiences of young people diagnosed with Type 1 Diabetes (T1D). In total, Healthwatch spoke to 34 young people attending the T1D clinics at the Royal Blackburn Hospital (24 people) and the Burnley General Hospital (10 people.)
The questions they were asked were designed to investigate their experiences of the transition to adult services. ELHT wanted to focus on this ‘transition period’ as it can be a particularly fraught and challenging time for young people as it falls during a time when they may be experiencing other life changes. Improper diabetes management for this age group has been partially blamed for the UK mortality rate being higher than that of Europe⁹.
Read the full report here.
Healthwatch Blackburn with Darwen followed up this work with further surveys of young people who do not attend the Diabetes Clinic to understand the barriers they face and make recommendations to the Clinic as to how these might be addressed. Read this follow up report here.
Adult Mental Health - Experiences of Crisis
Healthwatch Blackburn with Darwen carried out consultation with residents on their experience of adult mental health services at crisis point and on admission to a mental health inpatient facility. Find the full report of our findings here.
Care at Home Forum Three Transcript - 16th January 2020
See the transcript from the event here. This forum focused on direct payments and personal health budgets.
Care at Home Forum Two Transcript - 12th November 2019
See the transcript from the event here. This forum focused on the topics of triage and assessment and complaints management.
2019 Dementia Friendly Discharge
Healthwatch Blackburn with Darwen undertook engagement to give a voice to those affected by dementia including family and carers who have experienced a hospital discharge in the borough of Blackburn with Darwen and transition back to their own home or residential care. Please find attached separate reports for people's experiences of discharge to their own home and to a residential care home.
2019 Type 2 Diabetes Report
Healthwatch Blackburn with Darwen have engaged with people living in the East Primary Care Neighbourhood in Blackburn to understand their views about the education and support on offer to help them manage type 2 diabetes. Click here for the full report to find what people told us.
Revisit of the 2017 Young Patient's Voice at Royal Blackburn Hospital Children's Ward.
In 2016/17 Healthwatch BwD and Healthwatch Lancashire were invited to gather feedback from children on young people being treated at Royal Blackburn Hospital. This year, we revisited the children's ward at Royal Blackburn Hospital and reviewed the progress that had been made. Please click here for the full report.
Care at Home Forum One Transcript - 20th August 2019
See the transcript from the event here. The next Forum is on 12th November 2019 at St. John Ambulance at 1-2.30pm.
Healthwatch Collaborative Work - Breast and Cervical Cancer Screening Toolkits
NHS England and NHS Improvement commissioned Healthwatch Together (Blackburn with Darwen, Blackpool, Cumbria and Lancashire) to support potential changes to service delivery in cancer screening programmes amongst women with learning disabilities. Healthwatch Together wanted to find out what local women with learning disabiities, their families and carers think about breast and cervical screening and hear about their experiences.
The findings from engagement were utilised to draw up a localised toolkit to support appropriate communication messages for cervical cancer screening and breast cancer screening. Through a series of co-production workshops, two easy read toolkits were designed with women, families, carers and professionals.
See the final reports for breast cancer screening and cervical screening attached.
Dental Care - Views of Children, Young People and Parents in Blackburn with Darwen
Healthwatch Blackburn with Darwen has worked to find out the views and experiences of young people and parents on Oral Health within Blackburn with Darwen, which will allow us to influence local health and social care provision to best meet their needs. Read the full report here.
Revisit of Homelessness and Vulnerable Residents Projects
In this project we have revisited the recommendations & service provider responses from the 2016/17 report to determine whether changes have been considered further and implemented. We have looked at the services commissioned to support this group of people and if the services are meeting the needs of vulnerable people within Blackburn with Darwen. Read our findings here
Adverse Childhood Experiences
Healthwatch Blackburn with Darwen has worked with our Amplify Champions to understand Adverse Childhood Experiences and how these can be addressed early on by work in schools, youth groups and with families. The Champions were trained to become 'ACE informed' by consultant Sue Irwin and compiled a toolkit to be shared in schools and youth groups. Read their report here.
Asthma - Views of Children and Young People in Blackburn
Healthwatch Blackburn with Darwen has worked to find out the views and experiences of young people and parents on the Asthma service within Blackburn with Darwen, which will allow us to influence local health and social care provision to best meet their needs. To bring about positive change, we need to encourage self-management of children and young people's asthma. This requires support from healthcare professionals to support parents/carers and children with self-management with a combination of education, awareness and asthma plans.
Read the full report here.
Healthwatch Collaborative Report - "Have Your Say: Digital Health"
Last year Healthier Lancashire and South Cumbria asked the Healthwatch Collaborative (Blackburn wth Darwen, Blackpool, Cumbria and Lancashire) to help them find out what local people think about using digital technology to manage their health and wellbeing. Almost 2,000 people got involved in the conversation about digital health. Today (26 February 2019), the final report has been published.
The aim of the project was to explore how local people currently use technology to manage their health and wellbeing – and that of their families and those they support or care for.
Dr Amanda Thornton, Digital Health Clinical Lead for Healthier Lancashire and South Cumbria said: “We wanted to hear how we could help empower every person to feel confident and capable of making informed decisions about their health and wellbeing, recognising that for some people technology is already playing an important part in supporting this. We need to get it right and enable people to become confident to go online and access information that would help them manage their own health and wellbeing more easily – whenever they want to and wherever they are.For those who would like to use digital but cannot, our aim will be to find ways to help them get online. It’s invaluable for us to have this real insight from local people and we are already using it to prioritise our digital health plans. We are hugely grateful to all of the people who took the time to have their say and to Healthwatch for their support with this project.”
Nick Colledge, Engagement Officer at Healthwatch Lancashire said: “The project was a huge success and we are delighted to have received such a rich response, and the opportunity to understand the needs and experiences of people from all backgrounds. We pride ourselves on our commitment to making sure everyone is able to have their say, and believe that this was achieved through our diverse range of engagements throughout the project. We very much look forward to continuing our work with Healthier Lancashire and South Cumbria, monitoring progress on the digital health strategy and letting the public know how their input has made a difference.”
The full report can be accessed here.
GP Online Access report
Please click here to read more about our engagement with residents of Blackburn with Darwen to understand their experiences, both positive and negative, and identify common themes or any barriers that people may face in supporting their health digitally. Report published January 2019.
Healthwatch Collaborative Report - Thrive
Healthwatch Blackburn with Darwen contributed to a collaborative report led by Healthwatch Lancashire on the redesign of mental health services for young people. This work was delivered through a number of workshops across Lancashire and Cumbria, capturing the experiences and recommendations of children and young people, their families and carers as well as providers on how we can make mental health services work best for our young people. Read the full report here.
Eating Disorders Report - May 2018
In May 2018 we published a report on young people's views of body image and eating disorders.
Accident and Emergency Report - May 2018
In May 2018 we published a report on Accident and Emergency department
Asylum Seeker and Refugees Community Report - 2018 volunteer-led project
In March 2018 we published a report on our volunteer-led project on asylum seekers and refugees in BwD
Escaping Loneliness and Isolation - 2017 volunteer-led project
In January 2018 we published a report managed by our volunteers in 2017 on loneliness and isolation in BwD
targeted engagement projects with seldom heard residents
Great Practice Report - August 2017
In August we published a report on GP Experiences. Have a look for more information
Sensory Impairment Report - August 2017
In August we published a report looking at residents with a sensory impariement. Have a look for more information.
#personfirst: Blackburn with Darwen's Homeless Population
In May 2017 we published our #Personfirst Blackburn with Darwen's Homeless Population report.